The group met today and had quite a lot to talk about. One of the members felt comfortable enough to share with the peer support group how he’d started to forget familiar names and how this had clearly upset him. All group members were able to sympathise with him.
‘Peer support is the best’
The group met last week to see and approve the draft of the comic which is now almost completed. The story tells of a morning in the lives of two people living with dementia and the difficulties they come across and how they address them positively. The characters profiles have been written by the group thus bringing the characters to life for the group. The illustrator also joined us via Skype. The researcher from Manchester University talked to the members about the launch of the comic June 26th in Manchester. All are looking forward to this.
Peer support group members met for the second time to continue with the development of a Bookmark, with funding from DEEP. We were joined once more by two second year medical students from Keele University Members of the group had lots of ideas for the bookmark and the two medical students expressed how their perception of people living with dementia had greatly changed.
During this session the members highlighted terms including ‘word finding’ and confusion and also feelings of depression and anxiety, loneliness, dignity. On a positive note all agreed the need to keep busy and have a good sense of humour.
Peer support group members with two second year medical students started the development of a Bookmark. Previously the Dementia advocacy Peer Support group had successfully applied for funding from DEEP to produce a bookmark.
Members of the group had lots of ideas for the bookmark and the two medical students expressed how their perception of people living with dementia had greatly changed.
The Bookmark will illustrate how dementia not only affects short term memory.
During the session Members highlighted words including Fear, Confidence, and Noise.
We were delighted how much we gained from this first session and are already looking forward to the next session. The Bookmark will be launched later in the year
Group members met today and welcomed a new member. Members discussed the terminology we currently use about people with dementia ” living well with dementia” saying does it reflect badly for the person with dementia who is not living well. Members came up with different ideas one was ” managing my dementia” another one was ” doing all right with my dementia”.
Members were asked to come up with any ideas they had for dementia awareness week.
One member said how he would like to be involved locally with initiatives about dementia.
Four members of the group have agreed to form a sub group to develop the bookmark to be produced later this year by the Dementia Advocacy Peer Support Group.
Good News for group members. Members were informed today that we have been successful with our recent application to DEEP (Dementia Empowerment Engagement Project) to develop a bookmark. The idea to produce a bookmark highlighting how dementia does not only affect short term memory, came from members of the group. Members indicate how their dementia has impacted on other areas. For example noise, loneliness, touch and eyesight. Members are going to produce the bookmark citing how dementia can affect other areas but showing how you there how they resolve such issues.
The bookmark will be produced by people living with dementia for people with dementia.
Members are eager to begin this initiative
Watch this space for the Bookmark
The peer support group members met today and produced an animated scene for the comic. Members were excited to see the almost completed comic. The characters profiles have been written by the group thus bringing the characters to life for the group. The researcher from Manchester University talked to the members about the launch and members gave their ideas of how and where the launch should be.
The Dementia Advocacy Peer Support Group met today and we welcomed a new member, sharing experiences and offering support to each other. We were also joined by a researcher to talk about Join Dementia Research service. The researcher wished to consult with the group about ‘when is the right time, on the dementia pathway, to approach the subject of research’ . The group members have often stated that at diagnosis there is an overload of emotions and information. They feel it is best to give time, initially, for information to sink in then give information in person, not just leaflets.
Lovely start to a busy day
What a fantastic morning we had with the dementia advocacy peer support group , pupils from Haywood Academy , care home managers and guests to celebrate #DAW2018 We shared experiences and stories. Sue and the students who made the twilddle boards presented the boards to the staff from Park Hall residential home Eldon House and Hillswood Lodge
All followed by snacks